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L’Association des Myasthéniques Isolés et Solidaires (les AMIS)
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We are a group of patients suffering from myasthenia gravis and their relatives with more than 2000 enrolled in the francophone space. Our actions are divided in 5 major areas :
- Welcome and support for people living with as well as their loved ones and guide them through every step of their struggle.
- Participate in the creation and implementation of modules of therapeutic education of the patient in collaboration with the hospital facilities
- Gather and share information on the disease, its treatment and its impact on everyday life by ensuring continuous watch on the scientific publications or administrative.
- To act and participate in the various congresses, conferences and symposium europeans and raise the voice of patients
- Support research by relaying the requests of volunteers for the therapeutic tests or by organizing meetings between researchers and patients.